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The importance of being FAIR and FAST – The clinical epidemiology and study platform of the German network university medicine (NUKLEUS).
Stud. Health Technol. Inform. 302, 93-97 (2023)
The COVID-19 pandemic has urged the need to set up, conduct and analyze high-quality epidemiological studies within a very short time-scale to provide timely evidence on influential factors on the pandemic, e.g. COVID-19 severity and disease course. The comprehensive research infrastructure developed to run the German National Pandemic Cohort Network within the Network University Medicine is now maintained within a generic clinical epidemiology and study platform NUKLEUS. It is operated and subsequently extended to allow efficient joint planning, execution and evaluation of clinical and clinical-epidemiological studies. We aim to provide high-quality biomedical data and biospecimens and make its results widely available to the scientific community by implementing findability, accessibility, interoperability and reusability - i.e. following the FAIR guiding principles. Thus, NUKLEUS might serve as role model for FAIR and fast implementation of clinical epidemiological studies within the setting of University Medical Centers and beyond.
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Publikationstyp
Artikel: Journalartikel
Dokumenttyp
Wissenschaftlicher Artikel
Schlagwörter
Covid-19 ; Data Reuse ; Fair Principles ; Images ; Biosamples ; Clinical Research Infrastructure ; Cohort Study
ISSN (print) / ISBN
0926-9630
Zeitschrift
Studies in Health Technology and Informatics
Quellenangaben
Band: 302,
Seiten: 93-97
Verlag
IOS Press
Verlagsort
Nieuwe Hemweg 6b, 1013 Bg Amsterdam, Netherlands
Nichtpatentliteratur
Publikationen
Begutachtungsstatus
Peer reviewed
Institut(e)
Institute of Epidemiology II (EPI2)
Förderungen
German Ministry of Research and Education