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Jung, N.H.* ; Brix, O.* ; Bernius, P.* ; Schroeder, A.S.* ; Kluger, G.J.* ; Beyerlein, A. ; Weir, S.* ; von Kries, R.* ; Narayanan, U.G.* ; Mall, V.* ; Berweck, S.*

German translation of the caregiver priorities and child health index of life with disabilities questionnaire: Test-retest reliability and correlation with gross motor function in children with cerebral palsy.

Neuropediatrics 45, 289-293 (2014)

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Open Access Green as soon as Postprint is submitted to ZB.

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We aimed to translate the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire into German and to evaluate its reliability and validity by studying the association between CPCHILD scores and gross motor function as measured by the gross motor function classification system (GMFCS) in children with cerebral palsy (CP). The original CPCHILD questionnaire and manual were translated and back translated. It was administered to primary caregivers of persons with CP (GMFCS levels III-V) and was completed a second time 2 weeks after the first to measure test-retest reliability (n = 17). Primary caregivers of 68 children with CP; GMFCS level III (n = 14), level IV (n = 28), and level V (n = 26) completed the questionnaire. Mean total CPCHILD scores across GMFCS levels were 67.1 ± 14.9 for GMFCS level III, 56.6 ± 11.8 for level IV, and 44.3 ± 12.9 for level V. Good correlation (r = - 0.56) was observed between GMFCS and total scores test-retest reliability showed intraclass correlation coefficients between 0.4 and 0.9. The German CPCHILD yielded similar test-retest reliability and score distributions across the GMFCS level as the original version. The best correlations were observed for domains that are close to the functional deficits.

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Publication type Article: Journal article

Document type Scientific Article

Corresponding Author

Keywords Cerebral Palsy ; Health-related Quality Of Life ; Cpchild ; Gross Motor Function; Quality-of-life; Randomized Controlled-trial; Validation

ISSN (print) / ISBN 0174-304X

e-ISSN 1439-1899

Journal Neuropediatrics

Quellenangaben Volume: 45, Issue: 5, Pages: 289-293

Publisher Thieme

Publishing Place Stuttgart

Non-patent literature Publications

Reviewing status Peer reviewed

Institute(s) Institute of Diabetes Research (IDF)