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Kreuter, M.* ; Herth, F.* ; Wacker, M. ; Leidl, R. ; Hellmann, A.* ; Pfeifer, M.* ; Behr, J.* ; Witt, S. ; Kauschka, D.* ; Mall, M.* ; Günther, A.* ; Markart, P.*

Exploring clinical and epidemiological characteristics of interstitial lung diseases: Rationale, aims, and design of a nationwide prospective registry - the EXCITING-ILD registry.

Biomed Res. Int. 2015:123876 (2015)
Publ. Version/Full Text DOI PMC
Open Access Gold
Creative Commons Lizenzvertrag
Despite a number of prospective registries conducted in past years, the current epidemiology of interstitial lung diseases (ILD) is still not well defined, particularly regarding the prevalence and incidence, their management, healthcare utilisation needs, and healthcare-associated costs. To address these issues in Germany, a new prospective ILD registry, “Exploring Clinical and Epidemiological Characteristics of Interstitial Lung Diseases” (EXCITING-ILD), is being conducted by the German Centre for Lung Research in association with ambulatory, inpatient, scientific pulmonology organisations and patient support groups. This multicentre, noninterventional, prospective, and observational ILD registry aims to collect comprehensive and validated data from all healthcare institutions on the incidence, prevalence, characteristics, management, and outcomes regarding all ILD presentations in the real-world setting. Specifically, this registry will collect demographic data, disease-related data such as ILD subtype, treatments, diagnostic procedures (e.g., HRCT, surgical lung biopsy), risk factors (e.g., familial ILD), significant comorbidities, ILD managements, and disease outcomes as well as healthcare resource consumption. The EXCITING-ILD registry will include in-patient and out-patient ILD healthcare facilities in more than 100 sites. In summary, this registry will document comprehensive and current epidemiological data as well as important health economic data for ILDs in Germany.
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Publication type Article: Journal article
Document type Scientific Article
Corresponding Author
ISSN (print) / ISBN 2314-6133
e-ISSN 2314-6141
Journal BioMed Research International
Quellenangaben Volume: 2015, Issue: , Pages: , Article Number: 123876 Supplement: ,
Publisher Hindawi
Publishing Place [New York, NY] [u.a.]
Non-patent literature Publications
Reviewing status Peer reviewed
Institute(s) German Center for Lung Research (DZL)
Institute of Health Economics and Health Care Management (IGM)
Lung Health and Immunity (LHI)