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The importance of being FAIR and FAST – The clinical epidemiology and study platform of the German network university medicine (NUKLEUS).
Stud. Health Technol. Inform. 302, 93-97 (2023)
The COVID-19 pandemic has urged the need to set up, conduct and analyze high-quality epidemiological studies within a very short time-scale to provide timely evidence on influential factors on the pandemic, e.g. COVID-19 severity and disease course. The comprehensive research infrastructure developed to run the German National Pandemic Cohort Network within the Network University Medicine is now maintained within a generic clinical epidemiology and study platform NUKLEUS. It is operated and subsequently extended to allow efficient joint planning, execution and evaluation of clinical and clinical-epidemiological studies. We aim to provide high-quality biomedical data and biospecimens and make its results widely available to the scientific community by implementing findability, accessibility, interoperability and reusability - i.e. following the FAIR guiding principles. Thus, NUKLEUS might serve as role model for FAIR and fast implementation of clinical epidemiological studies within the setting of University Medical Centers and beyond.
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Publication type
Article: Journal article
Document type
Scientific Article
Keywords
Covid-19 ; Data Reuse ; Fair Principles ; Images ; Biosamples ; Clinical Research Infrastructure ; Cohort Study
ISSN (print) / ISBN
0926-9630
Quellenangaben
Volume: 302,
Pages: 93-97
Publisher
IOS Press
Publishing Place
Nieuwe Hemweg 6b, 1013 Bg Amsterdam, Netherlands
Non-patent literature
Publications
Reviewing status
Peer reviewed
Institute(s)
Institute of Epidemiology II (EPI2)
Grants
German Ministry of Research and Education