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Inau, E.T.* ; Dedic, A.* ; Anastasova, I.* ; Schick, R.* ; Zdravomyslov, Y.* ; Fröhlich, B.* ; Birkenfeld, A.L. ; Hrabě de Angelis, M. ; Roden, M.* ; Zeleke, A.A.* ; Preusse, M.* ; Waltemath, D.*

The Journey to a FAIR CORE DATA SET for Diabetes Research in Germany.

Sci. Data 11:1159 (2024)

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	Open Access Gold

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The German Center for Diabetes Research (DZD) established a core data set (CDS) of clinical parameters relevant for diabetes research in 2021. The CDS is central to the design of current and future DZD studies. Here, we describe the process and outcomes of FAIRifying the initial version of the CDS. We first did a baseline evaluation of the FAIRness using the FAIR Data Maturity Model. The FAIRification process and the results of this assessment led us to convert the CDS into the recommended format for spreadsheets, annotating the parameters with standardized medical codes, licensing the data set, enriching the data set with metadata, and indexing the metadata. The FAIRified version of the CDS is more suitable for data sharing in diabetes research across DZD sites and beyond. It contributes to the reusability of health research studies.

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Publication type Article: Journal article

Document type Scientific Article

Corresponding Author

Keywords Data Dictionaries; Information; Standards; Workflow; Model; Umls

ISSN (print) / ISBN 2052-4463

e-ISSN 2052-4463

Journal Scientific Data

Quellenangaben Volume: 11, Issue: 1, Article Number: 1159

Publisher Nature Publishing Group

Publishing Place London

Non-patent literature Publications

Reviewing status Peer reviewed

Institute(s) Institute of Diabetes Research and Metabolic Diseases (IDM)
Institute of Experimental Genetics (IEG)

Grants Projekt DEAL
Deutsches Zentrum fur Diabetesforschung (German Center for Diabetes Research)
NFDI4 Health - Nationale Forschungsdateninfrastruktur fur personenbezogene Gesundheitsdaten (DFG)