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Engagement with the national electronic health records by people with Parkinson's disease.
Front. Aging Neurosci. 18:1817635 (2026)
Background: People with
Parkinson's disease (PwPD) require coordinated, multidisciplinary care,
which can be facilitated by Electronic Health Records (EHRs) enabling
efficient information exchange and personalized decision-making.
Understanding which patient-, healthcare provider- (HCP), and
technology-related factors drive EHR engagement among older population
with complex health needs is crucial for the successful adoption and
advancement of digital transformation in medicine.Methods: Guided
by the digital health empowerment framework, this cross-sectional study
explored patient engagement with the national EHRs among 191 PwPD in
Luxembourg, using validated instruments, including eHealth Literacy
Questionnaire (eHLQ) and Health Information National Trends Survey
(HINTS).Results: Findings
from the descriptive and regression analysis showed that only 29.8%
respondents engaged multiple times with their personal EHR in the
previous year, 70.2% have not used it, including 40.8 % who have never
access it since the launch of EHR system. Key factors associated with
higher engagement with personal EHR included being born in Luxembourg,
milder disease severity, and higher digital health literacy, as well as
receiving support from HCPs to use personal EHR. Surprisingly, higher
trust in HCPs and greater health literacy were linked to lower personal
EHR usage.Conclusions: Personal
EHR engagement among the vulnerable aging population is influenced by a
complex interplay of patient, HCP, and technology-related factors,
which must be addressed holistically to ensure inclusive usage and
adherence to digital health tools.
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Publication type
Article: Journal article
Document type
Scientific Article
Keywords
Ehealth ; Digital Health ; Health Literacy ; Disease ; Digital Literacy ; Population ; Health Care ; Empowerment ; Health Information National Trends Survey; Management
ISSN (print) / ISBN
1663-4365
e-ISSN
1663-4365
Journal
Frontiers in aging neuroscience
Quellenangaben
Volume: 18,
Article Number: 1817635
Publisher
Frontiers
Publishing Place
Lausanne
Reviewing status
Peer reviewed
Institute(s)
Institute of AI for Health (AIH)
Grants
Luxembourg National Research Fund