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Nano, J. ; Carinci, F.* ; Okunade, O.* ; Whittaker, S.* ; Walbaum, M.* ; Barnard-Kelly, K.* ; Barthelmes, D.* ; Benson, T.* ; Calderon-Margalit, R.* ; Dennaoui, J.* ; Fraser, S.* ; Haig, R.* ; Hernández-Jimenéz, S.* ; Levitt, N.* ; Mbanya, J.C.* ; Naqvi, S.* ; Peters, A.L.* ; Peyrot, M.* ; Prabhaharan, M.* ; Pumerantz, A.* ; Raposo, J.* ; Santana, M.* ; Schmitt, A.* ; Skovlund, S.E.* ; Ulloa, A.C.G.* ; Wee, H.L.* ; Zaletel, J.* ; Massi-Benedetti, M.*

A standard set of person-centred outcomes for diabetes mellitus: Results of an international and unified approach.

Diabetic Med. 37, 2009-2018 (2020)
Verlagsversion DOI PMC
Open Access Hybrid
Creative Commons Lizenzvertrag
Aims: To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes. Methods: We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals. Results: The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment. Conclusions: We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way.
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Publikationstyp Artikel: Journalartikel
Dokumenttyp Wissenschaftlicher Artikel
Schlagwörter Health Information; Association; Depression; Distress; Privacy; Systems; Design; People; Care
Sprache englisch
Veröffentlichungsjahr 2020
HGF-Berichtsjahr 2020
ISSN (print) / ISBN 0742-3071
e-ISSN 1464-5491
Zeitschrift Diabetic Medicine
Quellenangaben Band: 37, Heft: 12, Seiten: 2009-2018 Artikelnummer: , Supplement: ,
Verlag Wiley
Verlagsort 111 River St, Hoboken 07030-5774, Nj Usa
Begutachtungsstatus Peer reviewed
Institut(e) Institute of Epidemiology (EPI)
POF Topic(s) 30202 - Environmental Health
90000 - German Center for Diabetes Research
Forschungsfeld(er) Genetics and Epidemiology
PSP-Element(e) G-504000-002
G-501900-401
DOI 10.1111/dme.14286
WOS ID WOS:000520763700001
Scopus ID 85082716759
PubMed ID 32124488
Erfassungsdatum 2020-03-24
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